Great news this month at the Byrd House:
1. We finally found a 1-story home to buy. We closed a few weeks ago and some determined workers are readying the house for the big move during the first week of August. Daily life with two power wheelchairs--oy! This should be fun!
2. Kyle has his powerchair now. Finally! After 13 months of applying and appealing denials and wheeling and dealing and praying, the boy has his wheels. We couldn't be more thrilled!
3. This week we were approved for a $53,000 grant to cover the cost of a wheelchair accessible van. We're working with the Clara Abbott Foundation and The Ability Center to iron out the details. We're hoping to have new transportation for the twins in the next few months. !!!
Never a quiet moment here. The kids keep us hopping, and the latest gene therapy and stem cell news keep us hopeful for a cure for Spinal Muscular Atrophy.
Saturday, July 17, 2010
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